How to Participate
The CSOR Research Database has now gone live!
Register to participate in the CSOR Research Database
If you are a parent of a child who:
- Has been diagnosed with, or treated for, Hirschsprung's disease, gastroschisis, congenital diaphragmatic hernia, oesophageal atresia, necrotising enterocolitis or posterior urethral valves, AND
- Was born after the 1st of June 2023, AND
- Was treated in one of the 10 CSOR hospitals:
- John Radcliffe Hospital, Oxford
- Birmingham Children's Hospital
- Southampton Children's Hospital
- Alder Hey Children's Hospital, Liverpool
- Royal Manchester Children's Hospital
- Great Ormond Street Hospital for Sick Children, London
- Chelsea and Westminster Hospital, London
- Addenbrookes Hospital, Cambridge
- Evelina Children's Hospital, London
- Royal Hospital for Children, Glasgow
We would like to invite you to participate in the CSOR research database. To find out more about how we will use the CSOR research database to improve the lives of children with surgical condition, and to sign up to participate, please visit the registration page:
www.csor.npeu.ox.ac.uk
Helping hospitals understand how successfully they are treating children
Between the end of 2024 and end of 2025 we will be working with the CSOR hospitals to help them understand more about how successfully they have treated children in the previous year, and how they may be able to improve things for the next year. We would like to involve parents of children who have been treated for a surgical condition in this process. If you would like to find out more about how you could get involved in this, please email csor@npeu.ox.ac.uk.
Understanding how well CSOR has worked
From mid 2025 we will be conducting an evaluation of how whether developing the CSOR programme has helped to improve the health and wellbeing of children with surgical conditions. Again, we would like to involve parents of children who have been treated for a surgical condition in this process. If you would like to find out more about how you could get involved in this, please email csor@npeu.ox.ac.uk.
Joining the Parental Advisory Group and our CSOR mailing list
Parents, carers and representatives of support groups and charities for children with surgical conditions, are invited to join our Parental Advisory Group. The group meet for a day once yearly where you will be updated on the work of the NPEU in childhood conditions, as well as discuss new research ideas and advise on many aspects of research underway.
If you would like to join the Parental Advisory Group and mailing list for updates on this project, as well as news about opportunities to be involved with other projects in child and maternal health, please contact the team at csor@npeu.ox.ac.uk.
Further information for CSOR project participants
The results of the project will be published in scientific journals and reports. It will not be possible to identify you from any publications or reports resulting from this project. The information you provide may be shared with other researchers for the purposes of related research. It will not be possible to identify you from the data we share.
Who do I contact if I have a concern or complaint?
If you have a concern about any aspect of this study, please contact Hatty Goddard, CSOR Programme Manager, at csor@npeu.ox.ac.uk; or call 01865 617771.
For further information about how the CSOR programme handles your data and your rights please read our Privacy Notice: www.csor.npeu.ox.ac.uk/privacy-notice
